Childcare stories from families with children with special educational needs and disabilities

Choosing the right childcare can be a difficult decision for every parent, but can be particularly challenging if your child has a special educational need or disability (SEND). An invaluable source of information can often be other parents, who you might come into contact with on a regular basis and who have shared similar experiences as you. They can give good insight and tips about how best to access services and how to find appropriate care for your child. Here are the stories and advice from a number of families of children with special educational needs and disabilities with whom we spoke.

Short films

Tracey and Erin’s story

Erin has been cared for by childminders Karen and Steve since she was a toddler and a strong bond has been formed with the whole family. We hear from Tracey, Erin’s mum, about just how valuable the good quality care provided has been in her daughter’s development and how her childminders have been instrumental in Erin’s successful transition to school.

Paul, Callum and William’s story

Paul is a single parent and dad to Callum and William. Without the support provided through his sons’ specialist childcare, Paul would have no respite care, would not be able to work and would have no opportunity to have any time for himself.

Amanda and Hannah’s story

Amanda describes how her daughter, Hannah, being able to attend a good quality, inclusive after-school-club, has allowed her work, but more importantly, has allowed Hannah to develop and become more independent and confident around her peers.

Jade and Preston’s story

Jade is mum to Preston. She didn’t have many opportunities for him to mix with children his own age. Her son’s nursery have been excellent in supporting Preston to access the childcare that he needs, making the very minor adaptations that will allow him to feel comfortable and develop around other children.

Adam's story

Adam is 11 years old. He has CHARGE Syndrome. His parents felt strongly that he needed to be playing with other children and in an environment where he would be developing alongside other children.

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George's story

George is six and has tuberous-sclerosis – a genetic condition which can be slow to emerge and often goes undiagnosed for several years. When George was a few months old, after being told by a childminder that she couldn’t offer him the care that he needed, and after much searching, his family managed to find someone with no direct experience of caring for a child with complex health needs, but who had a ‘can do’ attitude, who managed to access local funding, which enabled her to provide the care that George needed.

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Sam's story

Sam is five and has cerebral palsy. He communicates with his eyes and through making noises. Sam’s mum decided that it would be beneficial for all the family if he were in childcare for some of the week.

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Challengers' families

Challengers is a charity set up in the 1970s to fill a gap in childcare, after school and holiday activities for disabled children and young people in Surrey. We spoke to a number of families who use these services.

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